Y’all remember her right? Well, even though she left Dr. House’s office, she’s still involved in the same line of work. She was at the conference I attended last week and I may have mentioned that her code name on my blog was Sex Kitten. Of course, I had to send her the link.
She thinks that she’s a square and loved the idea of being called a sex kitten. She is most definitely not a square. If you would have seen the killer thigh high leather boots she was wearing Thursday, there would be no doubt about the sex kitten status.
Don’t worry Sex Kitten, my memory will forever remain hazy about the details. What happens in L.A., stays in L.A. Or something like that.
Not Sex Kitten
I’m out of steam and today, so that’s all I got.
Happy Monday Bitches!
You’ll notice the header change. Rare disease day is Sunday. I’m sure we all know someone with a rare disease. Hell, if you’re here on this page then you do know someone. Let me tell you why this day is so important.
Rare Disease Day is the perfect occasion to inform or remind people that rare diseases need to be paid special attention to, because:
Rare diseases are life-threatening or chronically debilitating diseases with a low prevalence and a high level of complexity. Patients with very rare diseases and their families are particularly isolated and vulnerable. The life expectancy of rare disease patients is significantly reduced and many have disabilities that become a source of discrimination and reduce or destroy educational, professional or social opportunities.
The rare disease patient is the orphan of health systems, often without diagnosis, without treatment, without research, therefore without reason to hope.
The lack of specific health policies and the scarcity of expertise translate into delayed appropriate diagnosis and difficulty of access to care. The national healthcare services for diagnosis, treatment and care of rare disease patients differ significantly in terms of their availability and quality. European citizens have unequal access to healthcare services and to orphan drugs.
Research on rare diseases is scarce
~ info “stolen” from here
So, while you’re contemplating all of that, why not consider donating to NORD, or one of the partners in your country. Or to a research organization that is working on a rare disease that affects someone you know. Maybe even … say a foundation that supports Devic’s Disease research (now, that’s just my personal favorite).
Happy Thursday y’all