Just keep swimming

Texas. Hot! And I am not talking about my husband*. I’ve had to order a cooling vest and cut out my 11 a.m. class for a week or two until it gets here. The East gym is half windows. Throw in 3 hours of twenty, hot, sweaty students and it is a recipe for UGH! There is this thing called Uthoff’s where, when you get overheated, the damaged nerves (think of an exposed wire) start confusing the signals they’re transmitting. Not so much fun.

I usually end up passed out on the couch around 2 p.m. every day. Knitting stitches falling off the needles, cat on my head, the dulcet tones of bad television playing in the background. I talk about jiu jitsu and wanting to win, but the reason this all started was getting in shape. I always have that thought, at the back of my mind, that something could go horribly wonky with the NMO. I want to be as strong and prepared as I can possibly be.

Either that or I need to spend less time looking at the NMO support group stuff. Horrific stories! Probably not the best nighttime reading. Just saying.

I’m off to make my special beans for a team get together. What are you doing today?

*Although, if he would change his FB picture to a current one, some people might think so. That current one is him at his heaviest. He was working on the train at the time, it was about a year after the NMO diagnosis and he emotionally ate his way through that first year. He is about 80 lbs lighter now. He thinks seeing his fat picture will motivate him to lose more.

3 thoughts on “Just keep swimming”

  1. Yep, I understand what you mean about those support group stories. On one hand, it lets you know that you aren’t alone and gives you some relief that you aren’t as bad as some others, and , but there’s also the fear that it could come to that. Plus it keeps the whole disorder in your immediate consciousness all the time. I had to give up running the support group for the disorder in my family in large part because of that.

    Siestas were invented for a reason. Afternoon naps when it’s hot are a good thing.


  2. Never heard of a cooling vest…maybe I’ll do some googling.
    A nap is a good thing. Funny how things we read don’t bother so much during the day but at night they get to be so bothersome.
    I hope you can get back to the jiu jitsu soon…


  3. I hope your cooling vest arrives soon and allows you to do the things you want and need to do.

    I understand that scenario very well, and am so proud of you in all you are doing to get stronger and take care of yourself. I hope you find the right balance for staying involved/informed with the support group stuff.

    What am I doing today? Packing, reading, staying weather-aware, and maybe knitting. Hope you are having a good day! xoxoxo


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